|Donor Registries Working Group|
The Donor Registries Working Group (DRWG) is working to achieve global consensus and harmonization of policies and operations of donor registries.
- Registry Handbook: A group of WMDA members is working on a handbook how to start a registry. The group meets by monthly conference call. If you are interested you are welcome to join.
Recommendations of the Donor Registries WG (DRWG):
Searching for matched unrelated donors (MUD) and cord blood units (CBU) on behalf of a patient seeking a stem cell transplant encompasses a wide range of work activities at each donor registry. Staff performing this function plays an integral role in searching databases of MUD and CBU on behalf of transplant centers/international donor registries and their patients. In some settings, staff performing this function is also responsible for performing Human Leukocyte Antigen (HLA) matching and donor selection. The WMDA Donor Registries WG finalized recommendations on training for staff performing patient-donor search. You can read more...
The courier has sole responsibility for the safe and timely transport of HPC from the collection centre to the transplant centre. Selection and assignment of courier responsibility is a collaborative process between the national registry, transplant centre and collection facility. The Donor Registries worked on several document for transport of HPC.
The DRWG has developed fillable PDF templates, which a registry can use in its own daily work. A forms committee is overseeing the forms. They review annually a the Fall meeting the forms.
WMDA ANNUAL REPORT
The Donor Registries WG encourages all stem cell donor registries to participate in the Annual Report project. In 2011 77 stem cell donor registries participated in the project. All participating organisations receive a CD-ROM. You can see here a picture how many unrelated stem cell products have been shipped in 2011.
Presentations: presentation about donor recruitment in Turkey (2007)
Minutes: link to minutes of the meetings (only for members)
Chair:Thomas Bart, Switzerland
Vice-chairs: Jungwah Nah, Korea and Irina Evseeva, United Kingdom
Last update: 13:01 20/12 2012